My hands are small I know, they are not yours they are my own – Jewell.
The song hands by Jewell has always spoken deeply to my heart. It connects with something deeply within me. I have never really thought too deeply about why and how this is but over the last few days I have been thinking about the idea of “quiet hands”. If you are unfamiliar with this you can read more about it over at Just Stimming’s Quiet Hands post. As I read this remarkable post and thought about it and the whole idea of quiet hands in preparation for the forthcoming Connecting Hemispheres episode, I think I have a bit of an idea of why this song has spoken so deeply to my soul.
Here is the song by Jewell. It’s worth taking the 3 mins or so to listen to it, whether for the first time or just one of many.
It’s a pretty simple concept. These hands are not yours they are my own. It shouldn’t be that hard a thing to get and to understand. These hands here at the end of my arms, they are mine not yours, and those at the end of your arms, they’re yours not mine. It’s not, as they say, rocket science is it.
Somehow for some reason there is this really screwed up idea that things that would never be tolerated for so-called normal children is somehow perfectly acceptable, even desirable, and tragically in some circles, considered to be best practice when it comes to autistic children.
Well no it’s not ok.
If it is abuse for your so-called normal child it’s damn well not therapy for an autistic child. Abuse is abuse is abuse.
Just because I say that cardboard is stone doesn’t make is so. And just because a so-called therapist says abuse is therapy doesn’t make it so.
No Abuse is abuse and it should be treated as such regardless of who it is perpetrated upon.
This whole “quiet hands” goes along with the concept of “table ready” and sits within a framework of so-called therapies like applied behaviour analysis (ABA), which aims to make the autistic child indistinguishable from the allistic child.
It is, to put it bluntly, a flawed view of humanity in my view. It is in essence a world-view that says to be autistic is to be less.
In the pursuit of this goal much damage has been done to autistic people. Abuse has been perpetrated on people for no other reason than the pursuit of conformity and uniformity.
Quiet hands, is one aspect of a strategy to stop and remove self stimulatory behaviours or “Stims”. It is done so with no desire to understand what these behaviours are about, what purpose they have, what they achieve for the person displaying them, what they communicate, or how they help a neurodiverse person function in a neurotypical world.
Personally I did not experience the “quiet hands” treatment as flapping has never been a stim I have used much, what I did experience though was being yelled at, slapped, spanked and the like for jigging my legs, fidgeting and fiddling with things and rubbing my fingers together, to name a few.
Leg jigging ha always been my stim of choice. It is done so automatically that most of the time I never even realise I am doing it until I have been for some time. To this day as a 45-year-old man I still flinch both internally and at times externally, in expectation of the thump from my mother or father for doing so.
“Quiet hands” along with other aspects of ABA “therapy” has been linked to autistic people subjected to it to developing Post Traumatic Stress Disorder (PTSD). This is just not ok. People are so traumatized they develop PTSD! And for what?
The only answer to the for what is: for the benefit of those that are uncomfortable, embarrassed or seek to change autistic people to appear to be more “normal”.
“Quiet hands”, “Table Ready” and ABA are merely euphemisms for practices that are traumatic for those that are subject to them.
They must be stopped.
I am autistic, I am not less. I am different. I seek acceptance for being autistic not awareness of something that needs to be changed, eradicated or made to appear invisible.
I am autistic, I seek accommodations to assist me, not abusive treatments to change me.
The pursuit of “quiet hands” is akin to telling a person with asthma they must not use their ventolin puffer, or a person with a spinal injury that they must not use a wheel chair. It is like harking back to the days of forcing left-handed children to write with their right hand whilst sitting on their left.
Just as the aversion and conversion techniques used commonly on gay men to turn them into straight men were no more than abuse, so too is the pursuit of “quiet hands”
My hands are small I know, they are not yours they are my own…
… Only kindness matters
intresting points on this blog and yes abuse is abuse but on your point about awareness for me personally awareness is not about eradicating autism or getting rid of it awareness of autism means just that it means that to be aware that ppl who have autism are NOT bad ppl they are just a little bit different and yeah that may be unacceptable to some ppl but for me personally it isnt as a person who has aspergers or high functioning autism this whole arguement against awareness is lead in my view by what dispicable orgaizations like autism speaks have done and in my country aspergers is getting more acceptable there is still a very long way to go but untill this disscussion about awareness is sorted then unfortunetly there will always be this arguement what needs to be done is ppl autistic or not to accept ALL views on the subject It also doesnt help the autistic ppl that aspergers is no longer reconised in the DSM for me aspegers IS a part of autism its on the autistic spectrum and for me aspergers DOES need to be reconized
I say that as because if i didnt get my aspergers diagnosis then well I dont think I would be the person I am today I would now probably be locked up in a secure mental health unit or worse it was only when I got the diagnosis that I got the support I have today not only that since I got that diagnosis I have learnt more about myself as a person than ever before I did get that diagnosis as an adult
The DSM has not removed Aspergers at all, it has simply placed it where it should be and that is firmly a part of the autistic category. This is in my view a good thing. There has been too much separatism between aspergers and autism unfortunately when in reality they are not all that different anyway.
The issue with awareness is it is in itself a passive thing, it requires no action. Acceptance however is an active thing and it does require action.
ok its obvious that we have totally different views on the subject of awareness and as a person who has aspergers this upsets me it really does but okay I will just agree to disagree for me awareness isnt passive but active as I HAVE said before you JUST cant have one with out the other so because of our obvious disagreement on this I wil just let you get on with your day OKAY
Language is one of my passions, and this is my problem with the word.
I think that most of the time awareness is a term used for something negative. We have Breast Cancer Awareness, last month was Vaccine Injury Awareness, and A$ is calling for Autism Awareness…Also, everybody is aware of our existence. Not everyone accepts us for who we are